Heart attacks, strokes, and blood clots in lupus

Lupus and Bactrim: List sulfa antibiotics (like Bactrim) in your allergy list if you have lupus Lupus patients are more likely to have allergies to antibiotics (plus, lupus and Bactrim are a bad combination)​ While lupus and Bactrim are …

What is Evusheld? It is a treatment to prevent COVID-19 infections. It is not a vaccine. It is made up of two different monoclonal antibodies.Evusheld reduces COVID-19 infections by 83%.Evusheld begins to wane after about 6 months. Therefore, …

1st drug ever FDA-approved to treat lupus nephritis ​Historic mile-stone! ​ December 16, 2020: The FDA approved on Wednesday DEC 16, 2020…  Benlysta for lupus nephritis as the first drug ever FDA-approved to treat lupus nephritis (inflammation of the kidneys).…

How to prevent and treat side effects from methotrexate: We have been using methotrexate to treat rheumatic diseases such as rheumatoid arthritis and lupus since the 1990’s. It is generally a safe medication when used along with the other important …

Revolutionary New Lab Test: Predicts if a lupus patient will have a systemic lupus erythematosus flare! A systemic lupus erythematosus flare can be devastating, interfere with quality of life, and can even cause organ damage. Imagine if they can be …

10 Reasons Not to Get a Flu Shot: The Flu Shot is a Life-Saver for Lupus Patients, Other Autoimmune Disease Patients, and … well… Everyone! It’s that time of year again. Time to get your flu shot! I already got …

What was it like getting the COVID-19 vaccine? … and some advice for lupus patients     A rheumatology researcher becomes a research study participant for the Pfizer COVID-19 vaccine   Dr. Kathryn Dao, a rheumatologist in Dallas, Texas, wrote about what it …

Lupus Lifestyle Changes are Important: Read here to learn about important dietary changes   Update in February 2023:      -Increasing the amount of selenium and zinc may be beneficial for lupus (see full discussion below above the image of tomatoes). Foods include:…

Proton pump inhibitor-induced subacute cutaneous lupus erythematosus: Clinical characteristics and outcomes In this post we’ll cover subacute cutaneous lupus due to proton pump inhibitors (PPI-induced SCLE). Poh YJ, Alrashid A, Sangle SR, et al. Lupus. 2022;31(9):1078-1083. doi:10.1177/09612033221104237 Subacute cutaneous lupus …

Melatonin For Lupus: What does the Research Show?       (Updated August 2021) Why do people think that melatonin for lupus patients is unsafe? Many people think that melatonin for lupus and other autoimmune diseases is unsafe. I believe …

Do you have lupus, then you absolutely want to learn about follow The Lupus Secrets so that you can learn practical tips for living with lupus? Do you know someone who has lupus? Are you a healthcare provider wanting to …

A potential new drug for lupus–​here are some early factsUPDATE: Anifrolumab (Saphnelo) was FDA-approved on August 2, 2021Saphnelo: The next FDA-approved drug to treat lupus Anifrolumab (Saphnelo) has the lupus community excited as the next …

Knowing how lupus and vaccines interact is important since infections are one of the top two causes of death and vaccines are instrumental in preventing infections. Most people realize how incredibly painful shingles is. However, many don’t realize just how …

Update March 2023: The journal Lupus reported a study showing that Benlysta is safe and effective to use during pregnancy Update February 2023: Benlysta was FDA-approved to treat lupus nephritis in children as young as 5 years old in July …

Lupus Nephritis Diagnosis in easy-to-understand language: FEB 2023 Update: See the 1st video below. It goes over the importance of diagnosing lupus nephritis as fast as possible, how it is diagnosed, what the symptoms of lupus nephritis are, what to …

Results from 64,900 vaccines: How often are allergies and itching after COVID vaccine? Hives (urticaria) photo credit: James Heilman, MD, Wikipedia, “Hives” ​Journal of the American Medical Association Research Study: March 2021 (reference and link to the study are at …

Benlysta for children with lupus kidney inflammation (lupus nephritis): FDA-approved on July 26, 2022 This is a monumental breakthrough since children with systemic lupus tend to be sicker than adults. FDA (US Food and Drug Administration) approval of drugs for …

Multiple studies show that stress and trauma increase the risk of developing lupus as well as causing lupus flares. QUESTION: "New research is showing that childhood trauma may contribute to the development of lupus? I read a study where those …

Updated Part MARCH 2023: Ghalandari et al from the Netherlands reported their results of using Benlysta during pregnancy in the March edition of the journal Lupus. Benlysta During Pregnancy: Safe and Effective [UPDATE MARCH 2023] Can lupus patients get pregnant and …

THE VOTE IS IN! See the new book cover below 315 people voted for the new book cover on Reddit, lupusencyclopedia.com, FaceBook, Twitter, friends, family, and the expert chapter editors. The winner is:The purple cover with 162 out of …

Research Shows More COVID-19 Deaths in Rheumatic Diseases: 10.5% of lupus and rheumatic disease patients died Much higher rate than infected people without rheumatic disease People with lupus and rheumatic diseases are at risk… ​What is the bottom line? What …

  Medical Marijuana (Cannabis, Cannabinoids, THC, CBD for Lupus)? Should patients use CBD for lupus? With the increasing popularity and availability of cannabis and CBD, many lupus patients ask, “How about CBD for lupus?” This online chapter of “The …

A lupus patient at Kelli Roseta’s “More Than Lupus” asks the question ” … is it safe to receive Botox or filler injections if you have lupus?” Thanks for posting this, More Than Lupus. My answer regarding …

Research Article: Passive transfer of fibromyalgia symptoms from patients to mice Goebel A, Krock E, Gentry C, Israel MR, Jurczak A, Urbina CM, Sandor K, Vastani N, Maurer M, Cuhadar U, Sensi S, Nomura Y, Menezes J, Baharpoor A, Brieskorn …

Quick Advice Guaranteed to Help Most with Dry Itchy Skin: Stop using Dove and other soaps that say they are for dry skin. They are often not good enough for lupus and Sjogren’s Instead of those soaps, get CeraVe Cream…

Which is better for lupus nephritis? ​Here is my answer! Which is better for lupus nephritis? Benlysta or Lupkyinis? … and the winner is… (read below) Updated 6/1/21: I included: – The specifics on the complete renal responses Benlysta vs …

Lupus and Sleep Problems are Common! Here are simple, effective strategies to improve your sleep Tips on better sleep Lupus and sleep problems are real. The lack of sleep has been associated with numerous problems such as fatigue, memory and …

If you are immunocompromised you should get a 5th COVID vaccine and Evusheld MoreThanLupus posted a Q and A. The answer is: The CDC now recommends that immunocompromised people should get a 5th COVID vaccine 4 months after your fourth …

Lupus and COVID vaccine: Dr. Thomas recommends not waiting to his patients, read below… Research regarding the COVID vaccine and lupus patients continues to be done. Should you wait to get yours? Dr. Thomas answer this question below: “I’ll tell …

The Lupus Foundation of America wants to learn more about the difficulties in being diagnosed with lupus Click here to participate in the Lupus Foundation of America Survey: ​The survey is about your experience with being diagnosed with lupus…

UPDATE FEB 2023: Watch YouTube video about diagnosing lupus nephritis (LN) early, how it is diagnosed and what to do if you get LN. See the 1st video below with Dr. Donald Thomas, Aurinia, and Kaleidoscope Fighting Lupus video below…

What is the anti-SSA test? What the lab technician sees under the microscope when testing a patient for anti-SSA antibodies. These are human epithelial cells to which blood was added from a patient who has anti-SSA antibodies, proving that that …

Should We be Recommending the COVID-19 Vaccine for Lupus Patients?: Yes! What I tell my systemic lupus patients as of 12/18/20: 4:00 PM regarding getting a COVID-19 vaccine for lupus patients The Advisory Committee on Immunization Practices (ACIP) of the …

The Latest Research Answers the Question: “Can discoid lupus turn into systemic lupus erythematosus?” Discoid lupus: note the round “disc” shape, the outer active inflamed border is pink, the central area has scar tissue “Can discoid lupus turn into systemic …

The Autoimmune Protocol (AI protocol) is another term for the anti-inflammatory diet. The chart below was shown to help patients with the autoimmune disease rheumatoid arthritis. Autoimmune Protocol (AI Protocol) used in 2020 rheumatoid arthritis study above The …

Immunosuppressants and COVID vaccine: which you should stop and not stop American College of Rheumatology Clinical Guidance Summary UPDATED AUG 2021 The above come from the ACR published guidelines. You can find the entire article here Revised with new drugs …

Lupus and Hepatitis B Addendum: The recommendations for hepatitis B vaccines changed in 2022. The CDC recommended that everyone, even those without risk factors, get a hepatitis B series if aged 19 to 59 years old. That is right! …

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Lupus and vitamin D in Women of Color. Why and what to do- “Ask Dr. T!” question of the week Vitamin D in women of color with lupus is an important problem. Women of color tend to have …

How to stop hair loss! – Yes! You can do things to help! And learn that much of the time… it is NOT due to lupus Learn more about hair loss from Don Thomas MD and the Lupus Foundation of …

Why do lupus patients need to give a clean catch urine sample every 3 months? Doing a clean catch urine sample wrong can cause false results Around 40% of systemic lupus erythematosus patients develop kidney inflammation (nephritis) and need to …

LATEST UPDATE: A nicely done study by Melles RB et al, FEB 2023, Hydroxychloroquine Dose and Risk for Incident Retinopathy A Cohort Study, resulted in this nice quote: “our findings suggest that, under current screening recommendations and …

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Super spreader COVID-19: New study shows the answers in the Annals of Internal Medicine Wear a mask to protect others! Quick Summary of Important Findings of the super spreader COVID-19: Super spreader COVID-19 information: Most infected people do not transmit …

Ask Dr. T Question about lupus diet and vegetarians Lupus and Vegetarian Diet? Eating a Vegetarian Diet can be Part of an Autoimmune Protocol (AI Protocol) There are studies showing that diets rich in omega-3 fatty acids may reduce lupus …

Kelli of “More Than Lupus” describes what she considers the best lupus books ​ What are your favorite lupus books? The best lupus books should deal with all aspects of lupus, evaluating the best medical evidence. They may …

Lupus by Lupus Warrior and Lupus Fighter Shanelle Gabrielle “​I still have a purpose … A reason to smile … I’m still living my life with no regrets.” ​You think you own me Squeezed my life in your palms Taken …

December 2022 update: Hydroxychloroquine is a disease-modifying agent for lupus (along with Benlysta). Antimalarial drugs can treat autoimmune diseases, such as lupus, Sjogren’s, and rheumatoid arthritis… ​ Here’s how! (described in easy to understand language) Malaria organism attaching …

If we prevent bacteria in urine (bacteriuria), could we decrease lupus flares? Bacteria in urine was found in a study to possibly increase flares in lupus patients. If this is true, then decreasing bacteria in the urine could possibly help …

  Note the impressively higher response rates in the blue bars (Lupkynis + mycophenolate + steroids) compared to pink (standard of care without Lupkynis). Impressive! This graph comes from the Lancet article referenced below. This is what pops up when you …