The Lupus Secrets [Practical Tips for Living with Lupus]

Dr. Donald Thomas, MD studying Dubois' text on systemic lupus erythematosus

Do you have lupus, then you absolutely want to learn about follow The Lupus Secrets so that you can learn practical tips for living with lupus?

Do you know someone who has lupus?

Are you a healthcare provider wanting to learn how to take better care of your lupus patients?

Learn the Lupus Secrets for living a Longer and Better Life with lupus?

If so … learn about and follow The Lupus Secrets from Donald Thomas, MD and his Lupus Encyclopedia.
And welcome. This is my very first post!

Dr. Donald Thomas, MD, wrote the “Lupus Secrets,” which are practical tips for living with lupus

​I (Donald Thomas, MD) am a rheumatologist who specializes in lupus. Over the past 25 years, I’ve compiled a list of “do’s” and “don’ts” for my lupus patients. These are tips that are guaranteed to help them be healthier and live longer. I called them The Lupus Secrets because most lupus patients do not know about them, and most doctors do not know about them. But I do not want to keep them secret. I witnessed firsthand over the years how much of a difference it made for lupus patients who followed them compared to patients who did not. This realization led me to write a practical lupus patient education book called The Lupus Encyclopedia.

How helpful are they? Let me tell you about a patient I recently saw. I’ve taken care of her for about 20 years. She has systemic lupus erythematosus (the type of lupus that can attack any part of the body). She has been a model patient, closely following my Lupus Secrets all these years. Recently, she had a flare of her lupus arthritis, fatigue, and lupus rash after being in remission for years. I checked a hydroxychloroquine (Plaquenil) drug level, and it was very low, telling me she was missing lots of doses. I was shocked. This was the reason for her flare, and it was not like her to do this.

When I pointed this out to her, she said, “Well, the pharmacist put on the prescription bottle label ‘take with food.’ I’ve been dieting to lose weight and eating less meals, so I kept forgetting it.” I then reminded her to please always contact me through our internet Patient Portal for any questions at all, such as this. I told her the label was a mistake; she actually CAN take it without food. After a shot of steroids in her buttock and getting back on her Plaquenil regularly, she was quickly in remission again.
I was pleasantly surprised to get the most beautiful “Thank You” card from her. It read:

Dr. Thomas … Just want you to know that I highly respect you as my doctor… This has been a wake up call for me and … You really care about your patients. God has kept me here with your help and I want to live a long time. No one lived past 60 years in my family.

It is something like this that truly makes your day. All of us can relate to this when something we do is genuinely appreciated by someone else.
However, what truly makes this card special?
My patient is now 73 years old. She has outlived all her relatives by 13 years …
She has lupus, and she lives by The Lupus Secrets.

My clinic is now full of systemic lupus patients in their 60s through 80s — something unheard of a couple of decades ago.

So, I hope you follow the path of this patient (and my other successful patients). Most of my patients with systemic lupus are in remission (or with low disease activity), including many who came through life-threatening bouts of their lupus. Read over and follow everything in my Lupus Secrets yourself.

I will write blog articles with tips on living with lupus and updated research information

What I will be doing with my blog in later articles:

  • Present the results of interesting, relevant lupus research, in easy to understand non-medical language.
  • Present any significant advancements in the treatment of lupus (such as upcoming new treatments… and some are on the way!).
  • Go into more detail about each Lupus Secret individually, discussing why it is essential.
  • Share information from “The Lupus Encyclopedia” for people who are unable to have access to a copy of my book.
  • Present tips on living a long, healthy life with lupus (just like my patient above).
  • Answer some of the comments and questions readers write about each post.
  • Add new information that I intend to add into the next edition of my book to keep readers up to date.
  • I will also include articles about important problems that many lupus patients have such as Sjögren’s, fibromyalgia, and osteoporosis.

Now my challenge for you … download, copy, read, and begin incorporating everything in “The Lupus Secrets” into your own life. If you do this, I promise you will do much better with your lupus and will increase your chances of living a healthier and longer life.

Please SHARE my blog with others who have lupus so they can also learn the best things to do.

Remember — knowledge is power. I hope to share with you as much as I can through my blog!

Don Thomas, MD
Author of “The Lupus Encyclopedia
Arthritis and Pain Associates of Prince George’s County
Greenbelt, Maryland, USA

The purple butterfly is the symbol for lupus. It is a symbol of “HOPE” for brighter tomorrow.

8 thoughts on “The Lupus Secrets [Practical Tips for Living with Lupus]

  • September 1, 2020 at 9:00 pm

    Thank you for starting this.. I have Primary APS Secondary Lupus, Fibromyalgia. I will be following this.

    • September 6, 2020 at 8:11 pm

      Sara: You are welcome. I will also occasionally include blog posts about APS and fibromyalgia as well, since they are so common in SLE patients.

  • September 2, 2020 at 5:11 pm

    Great to see this blog, thank you!
    I’m in Australia, 52 and have SLE, Lupus Nephritis, APS, SVT, Raynaud, and have had issues with Adrenal Insufficiency.

    • September 6, 2020 at 8:12 pm

      Bobbie: Glad you have you following my blog page. I’ll also include articles about lupus nephritis, Raynaud’s, and adrenal insufficiency in the future. These are all important for many SLE patients.

  • September 5, 2020 at 3:46 pm

    Dr. T I’m here from your Facebook page. I must confess I thought you were female, solely because I always sense genuine concern in your posts. I’m kinda ashamed of that. Patriarchy took over my senses. Thanks for all that you d .

    • September 6, 2020 at 8:22 pm

      Deborah: I will take that as a complement! Maybe we men are finally getting it right and following the lead of the smarter gender. Interestingly, I watched the PBS special on the Roosevelts the other night. It was amazing how men back then were expected to be rough and tough, putting themselves in harm’s way, while women were expected to stay at home, raise kids, cook, and clean. How did women put up with us this long? Thanks for following my new blog page.

  • September 6, 2020 at 8:17 pm

    Marco: So glad to see a man with SLE follow my page. So many men with SLE have difficulty with it since only 10% of our patients are male. Great strides are being made internationally with SLE in the past few years with major groups such as the American College of Rheumatology and the European Union League Against Rheumatism (EULAR) working closely together. Your story is not at all unusual. Although I do not know the specifics of your story, it is not unusual for SLE to cause just a few problems at a time (such as APS and DLE) before letting us know these were a part of SLE the entire time. I hope your future is much better!

  • Pingback:Lupus and Bactrim (a sulfa antibiotic) - The Lupus Encyclopedia

Leave a Reply

Your email address will not be published. Required fields are marked *