Deborah
How to Stop Lupus Hair Loss:
posted in Skin Problems in Lupus on February 11, 2021 by
Updated February 12, 2025
How to stop lupus hair loss! – Yes! You can do things to help!
And learn that much of the time… it is NOT due to lupus
Learn more about hair loss from Don Thomas MD and the Lupus Foundation of America
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NOTE: Johns Hopkins University Press, publisher of The Lupus Encyclopedia, is a nonprofit publisher. If you purchase JHUP books, like The Lupus Encyclopedia, you support projects like Project MUSE.
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Discoid lupus causes permanent hair loss (scarring alopecia) – it is a medical emergency!
Watch the YouTube videos on how to stop lupus hair loss below and learn:
– Lupus and hair loss can be devastating. Dr. Donald Thomas discusses how lupus causes hair loss
– The different types of hair loss are numerous and each have their own treatments. Learn about these possible causes of hair loss.
-Lupus and hair loss symptoms can vary between the different causes. Learn how they can differ. For example, lupus hair breakage where there are short hairs at the frontal areas of the scalp is often times called “lupus hair.” This type of hair loss usually grows back with treatment of the lupus.
– The “difference” between alopecia and hair loss. They mean the same thing. Learn about the origins of the word “alopecia.”
– What you doctor can do to help hair loss in lupus. Dr. Donald Thomas explains why it is so important to see a dermatologist who is experienced in taking care of hair loss.
– Nonscarring alopecia from systemic lupus grows back when lupus is treated successfully. Click on the link in this line to see one of my (Donald Thomas, MD) as an example.
– What you can do yourself to help ensure you get the best medical care, a proper diagnosis, and the best treatments available.
– Have a “Plan” for when discoid lupus hair loss flares! Discoid lupus flares can leave more skin damage and hair loss each time they occur. The faster you stop the inflammation of discoid lupus with medications, the better. This helps keep the hair loss from worsening.
– Dr. Donald Thomas explains what treatments work and which do not. He discusses many tips and tricks. For example, did you know that if you take biotin, it should be stopped a few days before all labs? Learn why in this video.
– Did you know that over-the-counter minoxidil is your best best to improve many causes of hair loss? More people try biotin because it is easy to take a tablet every day. Minoxidil requires that you rub it in the scalp twice daily. It is more work, but much more likely to help.
– What you should not waste your money on when it comes to hair loss in lupus. Learn what is the most effective over the counter treatment.
​- Much of the time… it is NOT lupus… learn how to tell and get the proper help
Click above for part 1 above … Part 2 below
For more in-depth information on hair loss and lupus:
Read chapter 8 of The Lupus Encyclopedia, edition 2
Look up your symptoms, conditions, and medications in the Index of The Lupus Encyclopedia
If you enjoy the information from The Lupus Encyclopedia, please click the “SUPPORT” button at the top of the page to learn how you can help.Â
What are your comments and opinions?
If you have had hair loss and lupus, what has your experience been? What do you recommend for other patients?
Do you have any questions to ask Dr. Thomas?
Please click on “Leave a Comment” above to comment.
Please support “The Lupus Encyclopedia” blog post page
Click on “SUPPORT” at the top of the page to learn how you can support “The Lupus Encyclopedia“
Author
Donald Thomas, MD author “The Lupus Encyclopedia” and “The Lupus Secrets“
For more in-depth information on How to Stop Lupus Hair Loss::
Read more in The Lupus Encyclopedia, edition 2
Look up your symptoms, conditions, and medications in the Index of The Lupus Encyclopedia
If you enjoy the information from The Lupus Encyclopedia, please click the “SUPPORT” button at the top of the page to learn how you can help.
What are your comments and opinions?
If you have lupus, what has your experience been? What do you recommend for other patients?
Do you have any questions to ask Dr. Thomas?
Please click on “Leave a Comment” above to comment.
Please support “The Lupus Encyclopedia” blog post page
Click on “SUPPORT” at the top of the page to learn how you can support “The Lupus Encyclopedia“
7 Comments
- Juanita Beverly
Can you advise a quality sensitive and interested Dr In NJ 07104 . Since 2008 Have been battling lupus and since 1997 fibromyalgia, rheumatoid and osteoarthritis ,apnea ,migraines,
sleep paralysis .Heart failure and copd newly diagnosed this year. Pain lever is not helped with meds tried (everything)
I have no less than 8 Drs and 5 are specialist yet yielding no relief of my pain.Your assistance is greatly anticipated and greatly appreciated. Have complete med coverage. Am willing to travel but closer better.
Thank you. JB- Donald ThomasModerator
Dear JB: So sorry to hear of your troubles. I am not accepting new patients. In my experience, situations like this can be very difficult, especially when fibromyalgia is a concomitant problem. It is essential that all specialists and doctors send each other notes and communicate. Make sure to get copies of every note, lab, and test result yourself. Make copies, and take to each doctors’ visit. This will ensure highest quality of care.
I wish you the very best in health and life!
Donald Thomas, MD
- Nissa Damani
- Donald ThomasModerator
Nissa: I do not. If I were in your place, I would call the dermatology departments of the largest medical centers closest to you (those with medical schools are optimal), then ask the receptionist if they are simply a scheduler or an actual staff of the dermatology clinic. Try to connect directly to a derm staff. Then ask, “is there any dermatologist in your department who specifically specializes in ‘medical dermatology’ or lupus?” Then make an appointment with that doc.
Good luck!
Donald Thomas, MD
- Margaret
My daughter (35) has generalized hair loss all over her scalp. No red scaly patches; no areas of total hair loss. Just very low density of hair per square cm and a ton of hair in the shower drain and on the floor every time she washes her hair. He doc has no suggestions and her dermatologist has only concentrated on her melasma. Do you have any suggestions? Would mindoxil be worth a try?
- Donald Thomas, MDModerator
Margaret:
1. My medical dermatologist recommends both topical and small dosed oral minoxidil to my patients.
2. I’d recommend your daughter make an appointment with the dermatologist specifically with these questions (and do not mention the melasma at all; make the appointment all about this): 1) What is the cause/diagnosis for my alopecia? 2) Do I need a biopsy to help figure it out? 3) and once the diagnosis is made ask “what are my options for treatment?” … 4) then most important, and what many people do not do (if they fail a treatment many just assume nothing can be done and don’t go back)… religiously use the treatment and regularly followup (eg as 6 month intervals) …. a trial and error method is usually what is needed. One treatment usually doesn’t fit all. And then for some, nothing works (eg with severe androgeneic alopecia and CCCA).
3. If you are unsure if that dermatologist would be adequate (for example, many dermatologists who do lots of cosmetic txs), then find specifically a dermatologists who specifically state “medical dermatologist” on their specialties. Calling up offices and asking this on the phone is a good way to find one. Also, they are especially easy to find at large medical centers that have teaching programsDonald Thomas, MD
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