How the COVID Vaccine and Lupus Interact is Important to Figure Out: Consider Joining this NIH Research Study
The NIH is studying how the COVID vaccine and lupus interact. Please consider participating in this important research.
You can also click on this link to read more about the study and what in entails.
We also need healthy volunteers and patients who have other autoimmune diseases as well. Share this information with your friends, family, and loved ones. You must live close enough to the NIH in Bethesda, Maryland in order to participate as you need to travel there for the study.
Note that they will reimburse you for your participation. You will also find out what your SARS spike protein antibody result is (how well you responded to the vaccine).
Don Thomas, MD, author of “The Lupus Encyclopedia” and “The Lupus Secrets“
Are Canadians eligible to participate in your study. I have SLE x 10 years. I recieved the Astrazenica vaccine 4 weeks ago, absolutely no reaction, ot even a sore arm.
Unfortunately, you need to be able to get to the NIH in Bethesda, Maryland
As a person with SLE is it still recommended to get the vaccine if the only one you can get is the AstraZenica one given the autoimmune blood clots in some people?
I live in Alberta Canada but have access to cheap flights across N America as I use to be a flight attendant and still have travel benefits. I could get to Maryland. How often would a participant have to go? I am a 43 yr old female with SLE – meet all the requirements and have had both doses of Moderna vaccine with no reaction.
Amanda: Just contact the lupus research nurses and they can let you know: 1. Research Contact Information for Lupus Team:
• Elaine Poncio, RN 301-435-4489, firstname.lastname@example.org or
• Yenealem Temesgen-Oyelakin, RN 301-451-4990,
I guess you have to live close the Bethesda to participate?
As far as blood clots… I would recommend that my SLE patients get the Moderna or Pfizer if possible. Especially those with antiphospholipid antibodies
Thank you Dr Thomas,
I am in Australia, we’ve been very lucky that we have had very little community transmission of the virus, unfortunately the only vaccine available to the public at the moment is the AstraZenica one.
I think I’ll hold off on the vaccine for now until there’s further information or the Pfizer or Moderna one is available.
I wish I could participate in the study but unfortunately I live across the country in Arizona. Best of Luck.
I had the Johnson & Johnson vaccine on 4/10/2021 & am having a lot of problems (extra exhaustion, more edema & swelling, migraines, nausea & GI issues, sweating, drop in oxygen saturation, etc.). I live near Philadelphia, PA.