Thank you to the Sjogren’s Foundation for producing this video as a part of their “Town Hall” series during the COVID-19 pandemic of 2020.Although this was directed towards people who have the autoimmune disorders, Sjogren’s, it also pertains to other autoimmune disorders, such as lupus, rheumatoid arthritis, scleroderma, polymyositis, and dermatomyositis.
Some facts about fatigue in lupus and other autoimmune diseases:
- It is one of the most common problems
- It is one of the most difficult symptoms to treat
- Hydroxychloroquine and belimumab (Benlysta) can help some systemic lupus erythematosus (SLE) patients with fatigue that is due to active inflammatory disease
- SLE patients with high anti-dsDNA, low C3, low C4, or high EC4d who have fatigue may improve with belimumab
- Surprisingly, the one treatment found to benefit more patients with autoimmune diseases than any other treatment is exercise!
- If you get less than 8 hours of good quality sleep each night, it is imperative to work on getting enough sleep. Taking a course in CBT-I is one of the best ways to learn to sleep well
Also, get a copy of my in depth talk about autoimmune disease fatigue from the Sjogren’s Foundation on their website: https://www.sjogrens.org/shop/2019-cd-fatigue-and-sjogrens-by-donald-e-thomas-jr-md