Research Studies in Lupus

Which is better for lupus nephritis? ​Here is my answer! Which is better for lupus nephritis? Benlysta or Lupkyinis? … and the winner is… (read below) Updated 6/1/21: I included: – The specifics on the complete renal responses Benlysta vs …

Updated Part MARCH 2023: Ghalandari et al from the Netherlands reported their results of using Benlysta during pregnancy in the March edition of the journal Lupus. Benlysta During Pregnancy: Safe and Effective [UPDATE MARCH 2023] Can lupus patients get pregnant and …

Lupus by Lupus Warrior and Lupus Fighter Shanelle Gabrielle “​I still have a purpose … A reason to smile … I’m still living my life with no regrets.” ​You think you own me Squeezed my life in your palms Taken …

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What was it like getting the COVID-19 vaccine? … and some advice for lupus patients     A rheumatology researcher becomes a research study participant for the Pfizer COVID-19 vaccine   Dr. Kathryn Dao, a rheumatologist in Dallas, Texas, wrote about what it …

IF YOU HAVE LUPUS OR ARE A CAREGIVER: Help current research on lupus by sharing your experiences with the Lupus Foundation of America by joining RAY (Research Accelerated by You) ​You can help with an easy online lupus research study!…

10 Reasons Not to Get a Flu Shot: The Flu Shot is a Life-Saver for Lupus Patients, Other Autoimmune Disease Patients, and … well… Everyone! It’s that time of year again. Time to get your flu shot! I already got …

Research Shows More COVID-19 Deaths in Rheumatic Diseases: 10.5% of lupus and rheumatic disease patients died Much higher rate than infected people without rheumatic disease People with lupus and rheumatic diseases are at risk… ​What is the bottom line? What …

If you are immunocompromised you should get a 5th COVID vaccine and Evusheld MoreThanLupus posted a Q and A. The answer is: The CDC now recommends that immunocompromised people should get a 5th COVID vaccine 4 months after your fourth …

UPDATED September 2021: I cannot wait to get my extra COVID vaccines … specifically my 3rd booster shot! 1/22/21 was a historical day for me! I got my 2nd Moderna vaccine! ​PLEASE… everyone… get yours as soon as you can!…

March 2023 Update on using Benlysta during pregnancy A March 2023 study found low B-cells at birth in the newborn baby of a woman who received Benlysta into the 3rd trimester… discussed below at this link. A research study …

Can lupus cause tooth decay? Learn here to lower your risk of losing teeth from dry mouth! ​ Saliva production is very important in keeping bad bacteria away and keeping our teeth and gums healthy. There are things you can …

  Medical Marijuana (Cannabis, Cannabinoids, THC, CBD for Lupus)? Should patients use CBD for lupus? With the increasing popularity and availability of cannabis and CBD, many lupus patients ask, “How about CBD for lupus?” This online chapter of “The …

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Why do lupus patients need to give a clean catch urine sample every 3 months? Doing a clean catch urine sample wrong can cause false results Around 40% of systemic lupus erythematosus patients develop kidney inflammation (nephritis) and need to …

A potential new drug for lupus–​here are some early factsUPDATE: Anifrolumab (Saphnelo) was FDA-approved on August 2, 2021Saphnelo: The next FDA-approved drug to treat lupus Anifrolumab (Saphnelo) has the lupus community excited as the next …

World-wide shortage of rheumatologists= getting worse. This is why it is getting harder to get an appointment with a rheumatologist. This NASA night view of the US looks very similar to the recent US map showing where rheumatologists are concentrated …

What is the anti-SSA test? What the lab technician sees under the microscope when testing a patient for anti-SSA antibodies. These are human epithelial cells to which blood was added from a patient who has anti-SSA antibodies, proving that that …

Lupus and Stroke and Heart Attacks: A bigger problem than we thought! We have known for a long time that a big problem for SLE patients: lupus and stroke and heart attacks. Diabetes has been considered an important cause of …

The Lupus Foundation of America wants to learn more about the difficulties in being diagnosed with lupus Click here to participate in the Lupus Foundation of America Survey: ​The survey is about your experience with being diagnosed with lupus…

Should We be Recommending the COVID-19 Vaccine for Lupus Patients?: Yes! What I tell my systemic lupus patients as of 12/18/20: 4:00 PM regarding getting a COVID-19 vaccine for lupus patients The Advisory Committee on Immunization Practices (ACIP) of the …

The Latest Research Answers the Question: “Can discoid lupus turn into systemic lupus erythematosus?” Discoid lupus: note the round “disc” shape, the outer active inflamed border is pink, the central area has scar tissue “Can discoid lupus turn into systemic …

Ask Dr. T Question about lupus diet and vegetarians Lupus and Vegetarian Diet? Eating a Vegetarian Diet can be Part of an Autoimmune Protocol (AI Protocol) There are studies showing that diets rich in omega-3 fatty acids may reduce lupus …

Read on: learn how you to figure out your lupus disease activity And why it is important Why measuring lupus disease activity is so important Our goal in treating systemic lupus erythematosus (SLE) is to get it into remission and …

The Autoimmune Protocol (AI protocol) is another term for the anti-inflammatory diet. The chart below was shown to help patients with the autoimmune disease rheumatoid arthritis. Autoimmune Protocol (AI Protocol) used in 2020 rheumatoid arthritis study above The …

Please continue to protect yourself as you did before if you have lupus or another systemic autoimmune disease and are vaccinated against COVID-19 QUESTION OF THE DAY: Dr. T. I have lupus. I got both of my Moderna COVID vaccines. …

December 2022 update: Hydroxychloroquine is a disease-modifying agent for lupus (along with Benlysta). Antimalarial drugs can treat autoimmune diseases, such as lupus, Sjogren’s, and rheumatoid arthritis… ​ Here’s how! (described in easy to understand language) Malaria organism attaching …

Revolutionary New Lab Test: Predicts if a lupus patient will have a systemic lupus erythematosus flare! A systemic lupus erythematosus flare can be devastating, interfere with quality of life, and can even cause organ damage. Imagine if they can be …

Lupus and Bactrim: List sulfa antibiotics (like Bactrim) in your allergy list if you have lupus Lupus patients are more likely to have allergies to antibiotics (plus, lupus and Bactrim are a bad combination)​ While lupus and Bactrim are …

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What is Evusheld? It is a treatment to prevent COVID-19 infections. It is not a vaccine. It is made up of two different monoclonal antibodies.Evusheld reduces COVID-19 infections by 83%.Evusheld begins to wane after about 6 months. Therefore, …

Knowing how lupus and vaccines interact is important since infections are one of the top two causes of death and vaccines are instrumental in preventing infections. Most people realize how incredibly painful shingles is. However, many don’t realize just how …

  ​A gift for Christmas 2020, since I’m a 90-Day Fiancé fan. Angela wishes me a Merry Christmas and mentions my book. She looks great since her weight loss surgery and she must still be with Michael of Nigeria since …

THE VOTE IS IN! See the new book cover below 315 people voted for the new book cover on Reddit, lupusencyclopedia.com, FaceBook, Twitter, friends, family, and the expert chapter editors. The winner is:The purple cover with 162 out of …

Quick Advice Guaranteed to Help Most with Dry Itchy Skin: Stop using Dove and other soaps that say they are for dry skin. They are often not good enough for lupus and Sjogren’s Instead of those soaps, get CeraVe Cream…

  Note the impressively higher response rates in the blue bars (Lupkynis + mycophenolate + steroids) compared to pink (standard of care without Lupkynis). Impressive! This graph comes from the Lancet article referenced below. This is what pops up when you …

  Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? We do not know, yet. However, the August 12, 2021 edition of the New England Journal of Medicine reported significant responses in immunosuppressed organ transplant patients. This gives …

Immunosuppressants and COVID vaccine: which you should stop and not stop American College of Rheumatology Clinical Guidance Summary UPDATED AUG 2021 The above come from the ACR published guidelines. You can find the entire article here Revised with new drugs …

The aiSLE DX Flare Risk Index test The Lupus Foundation of America, in its continuous quest to advocate for better care of lupus patients, just announced a new laboratory test that can help people who have systemic lupus erythematosus (SLE)…

An Epstein Barr virus (EBV) vaccine to prevent lupus? EBV infection may be a common trigger, causing the onset of diseases like lupus. This list includes disorders such as: Lupus Sjogren’s disease Rheumatoid arthritis Multiple sclerosis Chronic fatigue syndrome (myalgic …

Melatonin For Lupus: What does the Research Show?       (Updated August 2021) Why do people think that melatonin for lupus patients is unsafe? Many people think that melatonin for lupus and other autoimmune diseases is unsafe. I believe …

Lupus Lifestyle Changes are Important: Read here to learn about important dietary changes   Update in February 2023:      -Increasing the amount of selenium and zinc may be beneficial for lupus (see full discussion below above the image of tomatoes). Foods include:…

Lupus Nephritis Diagnosis in easy-to-understand language: FEB 2023 Update: See the 1st video below. It goes over the importance of diagnosing lupus nephritis as fast as possible, how it is diagnosed, what the symptoms of lupus nephritis are, what to …

Mitochondria found to be abnormal in SLE patient by the NIH. Exercise repaired the mitochondria and energy levels improved: see Hasni et al, below February 2023 update: In 2022, the National Institutes of Health showed that exercise repairs mitochondria and …

Some Immunosuppressant Drugs Cause Lower Antibody Levels after COVID Vaccine than do Other Drugs Home » Research Studies in Lupus A large study was published in the Annals of Rheumatic Diseases showing antibody levels after COVID vaccine in patients on …

Multiple studies show that stress and trauma increase the risk of developing lupus as well as causing lupus flares. QUESTION: "New research is showing that childhood trauma may contribute to the development of lupus? I read a study where those …

Know your labs when you have lupus Chromatin is our DNA packaged up nice and neat with other proteins such as histone and RNA. It protects our DNA. Photo: at Wikipedia.com from the NIH Chromatin Antibody (Also called Anti-Chromatin Antibody; …

Lupus Research Article Peroxisome proliferator-activated receptor-γ agonist pioglitazone improves vascular and metabolic dysfunction in systemic lupus erythematosus This NIH research study suggests that pioglitazone is helpful for lupus patients Hasni S, Temesgen-Oyelakin Y, Davis M, Chu J, Poncio E, Naqi …

New research suggests itchy skin is a sign of active lupus. Most lupus experts also know this. However, many other doctors do not. That is why this research is so helpful. We do not want itchy lupus rashes to be …

Lupus and Hepatitis B Addendum: The recommendations for hepatitis B vaccines changed in 2022. The CDC recommended that everyone, even those without risk factors, get a hepatitis B series if aged 19 to 59 years old. That is right! …