Nephritis, kidneys, urinary tract

Lupus Nephritis Diagnosis in easy-to-understand language: FEB 2023 Update: See the 1st video below. It goes over the importance of diagnosing lupus nephritis as fast as possible, how it is diagnosed, what the symptoms of lupus nephritis are, what to …

  Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? We do not know, yet. However, the August 12, 2021 edition of the New England Journal of Medicine reported significant responses in immunosuppressed organ transplant patients. This gives …

Quick Advice Guaranteed to Help Most with Dry Itchy Skin: Stop using Dove and other soaps that say they are for dry skin. They are often not good enough for lupus and Sjogren’s Instead of those soaps, get CeraVe Cream…

A potential new drug for lupus–​here are some early factsUPDATE: Anifrolumab (Saphnelo) was FDA-approved on August 2, 2021Saphnelo: The next FDA-approved drug to treat lupus Anifrolumab (Saphnelo) has the lupus community excited as the next …

Guest post: One method of coping with the struggles of lupus Living and coping with the challenges of lupus can be daunting. It creates challenges that are unpredictable. These challenges can include pain, fatigue, trouble sleeping, trouble concentrating, and many …

Centers for Disease Control 2022 Recommendations In February 2022, the CDC came out with its new vaccine recommendations. In this post, I will summarize the important changes for people who are immunosuppressed (such as people with systemic lupus erythematosus). …

Anifrolumab FDA Approval to Treat Systemic Lupus Erythematosus (SLE) AstraZeneca announced its anifrolumab FDA approval on 8/2/2021. In this blog, learn how anifrolumab works, how it is given, and its potential side effects. If you are a patient with lupus …

Lupus and Hepatitis B Addendum: The recommendations for hepatitis B vaccines changed in 2022. The CDC recommended that everyone, even those without risk factors, get a hepatitis B series if aged 19 to 59 years old. That is right! …

The Latest Research Answers the Question: “Can discoid lupus turn into systemic lupus erythematosus?” Discoid lupus: note the round “disc” shape, the outer active inflamed border is pink, the central area has scar tissue “Can discoid lupus turn into systemic …

Why do lupus patients need to give a clean catch urine sample every 3 months? Doing a clean catch urine sample wrong can cause false results Around 40% of systemic lupus erythematosus patients develop kidney inflammation (nephritis) and need to …

IF YOU HAVE LUPUS OR ARE A CAREGIVER: Help current research on lupus by sharing your experiences with the Lupus Foundation of America by joining RAY (Research Accelerated by You) ​You can help with an easy online lupus research study!…

THE VOTE IS IN! See the new book cover below 315 people voted for the new book cover on Reddit, lupusencyclopedia.com, FaceBook, Twitter, friends, family, and the expert chapter editors. The winner is:The purple cover with 162 out of …

Immunosuppressants and COVID vaccine: which you should stop and not stop American College of Rheumatology Clinical Guidance Summary UPDATED AUG 2021 The above come from the ACR published guidelines. You can find the entire article here Revised with new drugs …

The interactions of hepatitis C and systemic lupus is strange, and hepatitis C can mimic lupus … read on! Hepatitis C is a virus that can attack the liver (called hepatitis) as well as numerous other organs of the body. …

1st drug ever FDA-approved to treat lupus nephritis ​Historic mile-stone! ​ December 16, 2020: The FDA approved on Wednesday DEC 16, 2020…  Benlysta for lupus nephritis as the first drug ever FDA-approved to treat lupus nephritis (inflammation of the kidneys).…

Please continue to protect yourself as you did before if you have lupus or another systemic autoimmune disease and are vaccinated against COVID-19 QUESTION OF THE DAY: Dr. T. I have lupus. I got both of my Moderna COVID vaccines. …

Revolutionary New Lab Test: Predicts if a lupus patient will have a systemic lupus erythematosus flare! A systemic lupus erythematosus flare can be devastating, interfere with quality of life, and can even cause organ damage. Imagine if they can be …

Multiple studies show that stress and trauma increase the risk of developing lupus as well as causing lupus flares. QUESTION: "New research is showing that childhood trauma may contribute to the development of lupus? I read a study where those …

Which is better for lupus nephritis? ​Here is my answer! Which is better for lupus nephritis? Benlysta or Lupkyinis? … and the winner is… (read below) Updated 6/1/21: I included: – The specifics on the complete renal responses Benlysta vs …

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Updated Part MARCH 2023: Ghalandari et al from the Netherlands reported their results of using Benlysta during pregnancy in the March edition of the journal Lupus. Benlysta During Pregnancy: Safe and Effective [UPDATE MARCH 2023] Can lupus patients get pregnant and …

What is Evusheld? It is a treatment to prevent COVID-19 infections. It is not a vaccine. It is made up of two different monoclonal antibodies.Evusheld reduces COVID-19 infections by 83%.Evusheld begins to wane after about 6 months. Therefore, …

What was it like getting the COVID-19 vaccine? … and some advice for lupus patients     A rheumatology researcher becomes a research study participant for the Pfizer COVID-19 vaccine   Dr. Kathryn Dao, a rheumatologist in Dallas, Texas, wrote about what it …

If you are immunocompromised you should get a 5th COVID vaccine and Evusheld MoreThanLupus posted a Q and A. The answer is: The CDC now recommends that immunocompromised people should get a 5th COVID vaccine 4 months after your fourth …

Lupus and taking probiotics: Should you take probiotics if you have lupus, and what are the best probiotics for autoimmune disease? Lupus and taking probiotics: My answer in short: “No” to pills; “Yes” to probiotic and prebiotic-rich foods! Lupus Question …

Do not automatically stop hydroxychloroquine if your eye doctor tells you your patient has HCQ-retinopathy! Heed my practical advice below credit: By Wies6014 – Own work, CC BY-SA 4.0, httpscommons.wikimedia.orgwindex.phpcurid=77634880 FEB 2023 UPDATE: Good news from a 2023 study… “…

What is the anti-SSA test? What the lab technician sees under the microscope when testing a patient for anti-SSA antibodies. These are human epithelial cells to which blood was added from a patient who has anti-SSA antibodies, proving that that …

Lupus and Bactrim: List sulfa antibiotics (like Bactrim) in your allergy list if you have lupus Lupus patients are more likely to have allergies to antibiotics (plus, lupus and Bactrim are a bad combination)​ While lupus and Bactrim are …

Can lupus cause tooth decay? Learn here to lower your risk of losing teeth from dry mouth! ​ Saliva production is very important in keeping bad bacteria away and keeping our teeth and gums healthy. There are things you can …

What do the following have in common? LupusA drawing by a 3-year-oldJulian LennonFlowers and gardening suppliesAlice in WonderlandPink Floyd They all are woven into the story of the Beatles’ famous song: Lucy in the Sky …

Mitochondria found to be abnormal in SLE patient by the NIH. Exercise repaired the mitochondria and energy levels improved: see Hasni et al, below February 2023 update: In 2022, the National Institutes of Health showed that exercise repairs mitochondria and …

Read on to learn about newer tests that can help get a more accurate and faster diagnosis of lupus for a positive ANA workup         The Positive ANA Workup Begins the Journey     If someone is found to have a positive antinuclear …

The American College of Rheumatology Provides Guidance for stopping drugs to enhance the COVID vaccine for immunocompromised patients COVID-19 vaccine: Please get yours! Revised 9/6/21 with new drugs to stop for vaccines per revised ACR recommendations How should we deal …

It is amazing how the COVID-19 vaccine works (the mRNA vaccines, especially) It intrigues me how the COVID-19 vaccine works! How effective it is, and how safe it is. I got mine, #1, as of 12/29/20, and I got my …

UPDATE FEB 2023: Watch YouTube video about diagnosing lupus nephritis (LN) early, how it is diagnosed and what to do if you get LN. See the 1st video below with Dr. Donald Thomas, Aurinia, and Kaleidoscope Fighting Lupus video below…

Melatonin For Lupus: What does the Research Show?       (Updated August 2021) Why do people think that melatonin for lupus patients is unsafe? Many people think that melatonin for lupus and other autoimmune diseases is unsafe. I believe …

The aiSLE DX Flare Risk Index test The Lupus Foundation of America, in its continuous quest to advocate for better care of lupus patients, just announced a new laboratory test that can help people who have systemic lupus erythematosus (SLE)…

Hot off the press SEP 2020! The future is very bright for lupus treatments!         The future is brighter for lupus patients! Benlysta for lupus nephritis We have 3 drugs that are vying for FDA approval soon: Benlysta for lupus nephritis, …

Some Immunosuppressant Drugs Cause Lower Antibody Levels after COVID Vaccine than do Other Drugs Home » Nephritis, kidneys, urinary tract A large study was published in the Annals of Rheumatic Diseases showing antibody levels after COVID vaccine in patients on …

Systemic Lupus Erythematosus (SLE) can go into a lupus remission on medications or treatment Lupus patient: “My doctor told me last week that she has seen lupus go away in some patients. She said she thinks I am one of …

New research suggests itchy skin is a sign of active lupus. Most lupus experts also know this. However, many other doctors do not. That is why this research is so helpful. We do not want itchy lupus rashes to be …

Proton pump inhibitor-induced subacute cutaneous lupus erythematosus: Clinical characteristics and outcomes In this post we’ll cover subacute cutaneous lupus due to proton pump inhibitors (PPI-induced SCLE). Poh YJ, Alrashid A, Sangle SR, et al. Lupus. 2022;31(9):1078-1083. doi:10.1177/09612033221104237 Subacute cutaneous lupus …

How to stop hair loss! – Yes! You can do things to help! And learn that much of the time… it is NOT due to lupus Learn more about hair loss from Don Thomas MD and the Lupus Foundation of …

I just realized that many websites discussing lupus and cancer are outdated, using old research information. So, I decided to write this article with up-to-date information. “Is lupus a type of cancer?” This is not an uncommon question when someone …

Do you have lupus, then you absolutely want to learn about follow The Lupus Secrets so that you can learn practical tips for living with lupus? Do you know someone who has lupus? Are you a healthcare provider wanting to …

The Lupus Foundation of America wants to learn more about the difficulties in being diagnosed with lupus Click here to participate in the Lupus Foundation of America Survey: ​The survey is about your experience with being diagnosed with lupus…

Lupus and Sleep Problems are Common! Here are simple, effective strategies to improve your sleep Tips on better sleep Lupus and sleep problems are real. The lack of sleep has been associated with numerous problems such as fatigue, memory and …

Lupus by Lupus Warrior and Lupus Fighter Shanelle Gabrielle “​I still have a purpose … A reason to smile … I’m still living my life with no regrets.” ​You think you own me Squeezed my life in your palms Taken …

The causes of fatigue and dealing with autoimmune disease fatigue. ​ Tips on how to improve energy with Sjogren’s, lupus, and related disorders Fatigue is common in lupus This video discusses the causes of autoimmune disease fatigue and gives practical …

Should We be Recommending the COVID-19 Vaccine for Lupus Patients?: Yes! What I tell my systemic lupus patients as of 12/18/20: 4:00 PM regarding getting a COVID-19 vaccine for lupus patients The Advisory Committee on Immunization Practices (ACIP) of the …