The Lupus Encyclopedia: Comprehensive Guide for Patients and Families

About The Lupus Encyclopedia

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“The Lupus Encyclopedia” is a patient education book written by Donald Thomas, MD in easy to understand language for patients, their families, and their loved ones. It is so comprehensive and detailed that it is also an essential book that would benefit all health care providers as a reference regarding this complex disease and its management. Patients can look up any complication, lab test result, or medication in the index and find practical information regarding these matters. In addition, it contains a treasure trove of useful information where patients can learn to self-manage many of the problems of lupus such as fatigue, sleep problems, and pain. The medication sections are superior to the vast majority of sources about medications in that they provide truly useful information regarding which potential side effects may occur with any medicine used for lupus, what to do about them if they occur, as well as how to take the medications properly, and how they may impact surgery, pregnancy, breast feeding, etc.

Detailed sections regarding complications of lupus such as fibromyalgia and Sjogren’s syndrome give a lot of practical advice on how to deal with these problems. Sections on disability, insurance, patient assistance programs, and patient help groups are also included and are detailed.

Dr. Thomas openly asks that all readers consider emailing him directly with suggestions on additions or changes to the book so that these can be considered for future revisions in order to make this book as patient oriented and as practically helpful as possible. Recommendations can be sent to lupusencyclopedia@gmail.com. He also has an active Facebook page where he includes up dated information about lupus at www.facebook.com/LupusEncyclopedia; just click “LIKE” on his page in order to get regular updates. Also follow him on Twitter at lupuscyclopedia@twitter.com. Read our website’s privacy policy.

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Reviews of The Lupus Encyclopedia

“The Lupus Encyclopedia is a book that that every lupus patient should have in their home library. It’s the most comprehensive lupus book out there, and is a valuable resource for anyone searching for a detailed and in-depth explanation of this complicated and mysterious disease.”
(Sara Gorman Despite Lupus)

“A wealth of detail on the many ways lupus affects the human body, the various related treatment options, a range of patient resources for support, and more… a caring, comprehensive guide to understanding and coping with lupus.”
(Library Journal)

“There is great depth and much to learn from reading and referring to this important book… This book should stand the test of time as one of the great books about this complex auto-immune disease.”
(Lupus, the Adventure Between the Lines)

“This title strikes a pitch perfect balance: on one side, there is information of value to those suffering from or caring for the condition, on the other, data suitable for clinicians seeking a better general understanding of the condition. This volume represents outstanding value for money and would be a useful addition to medical, healthcare and personal bookshelves.”
(Reference Reviews)

“The Lupus Encyclopedia is [a] carefully-researched, easily-understood and comprehensive book. It is, as it claims, an ENCYCLOPEDIA… If you [could have] only one book in your library about lupus, The Lupus Encyclopedia might well be it.”
(The Lupus Guru)

“I highly recommend The Lupus Encyclopedia. It’s an amazing source of information, and I feel empowered by the fact that I have a reliable resource to turn to whenever I need it. No matter what your symptoms are or the level of severity, you owe it to yourself to get this book.”
(Lupine Life)

“We can’t imagine a more thorough, readable guide to lupus than this.”
(Pain-Free Living)

“People who have lupus and their primary care doctors will find in this book all the information they need.”
(from the Foreword by George C. Tsokos, M.D., Harvard Medical School)

“This is a highly readable medical text… This encyclopedia would be useful for public libraries, medical libraries, or academic libraries.”
(Amy B. Parsons American Reference Books Annual)