Share Lupus Experiences Now: Help current research on lupus

IF YOU HAVE LUPUS OR ARE A CAREGIVER: Help current research on lupus by sharing your experiences with the Lupus Foundation of America by joining RAY (Research Accelerated by You)

​You can help with an easy online lupus research study!

Here’s how!

We need more lupus research to help find better treatments and hopefully a cure for lupus
If you are not already doing so, make sure you are maximizing your life style in ways that will make it easier for you to fight against and live with your lupus. Make sure and do everything mentioned in my “Lupus Secrets”

The Lupus Foundation of America has a new lupus research initiative where people with lupus and their caregivers (wives, husbands, partners, etc) can share their experiences and help us learn more about lupus. They ask that you add information online at the RAY site throughout the year as your situation changes. Please help us fight against lupus so we can end up all winning!

RAY stands for “Research Accelerated by YOU”
Yes! You can make a difference!
You must live in the US to participate.

To participate in the RAY lupus research, you can easily do so. Go to the Lupus Foundation of America’s online data collection site at lupus.org/RAY

Please also SHARE this post with everyone you know who has lupus. Let’s help LFA!

We need to learn a lot more about systemic lupus erythematosus. Let us learn more by learning more about your experiences with lupus. Or, if you are the caregiver of someone suffering from lupus, you can participate and spread knowledge as well.

Make sure to spread the word. Also, consider joining “The Lupus Foundation of America” if you are not already a member. They are excellent at educating their members and work hard at advocacy and research support.

Author

Don Thomas, MD
Author of the “Lupus Encyclopedia” and strong advocate for all lupus patient organizations around the world!

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Participate in this lupus survey if you live in the USA [Survey is closed]

The Lupus Foundation of America wants to learn more about the difficulties in being diagnosed with lupus

Click here to participate in the Lupus Foundation of America Survey:
​The survey is about your experience with being diagnosed with lupus
After you take the survey, please consider commenting about the survey and about your experience with getting diagnosed. Newer and better tests are being developed. Doctors know that it can be very hard and frustrating. Using surveys like this can help us track over time how long it takes and what the diagnostic journey is like.

Author

Donald Thomas, MD
lupus educator and author of “The Lupus Encyclopedia”